Albinos Life Style & Home Remedies #albinismawareness #albinism #carealbinosusa
Albinos Life Style & Home Remedies:
Lifestyle and home remedies
You can help your child learn self-care practices that should continue into adulthood:
• Use low vision aids, such as a hand-held magnifying glass, a telescope or a magnifier that attaches to glasses. Another aid is a tablet connected to a digital whiteboard in the classroom. This is an interactive electronic board with a touch screen.
• Always use sunscreen with a sun protection factor (SPF) of 30 or greater that protects against both UVA and UVB light.
• Strictly avoid high-risk or lengthy sun exposure. Examples include being outside for long periods of time or in the middle of the day, at high altitudes, on or near water, and on sunny days with thin cloud cover.
• Wear protective clothing, including clothes with color. Examples include long-sleeve, collared shirts, long pants and socks; broad-brimmed hats; and special UV-protection clothing.
• Protect eyes by wearing dark, UV-blocking sunglasses. Another option is transition lenses called photochromic lenses, which darken in bright light.
Coping and support
Making school or work changes
If your child has albinism, begin early to work with teachers and school leaders to find ways to help your child adapt to classroom learning. If necessary, start with educating the school staff about albinism and how it affects your child. Ask what services the school offers to assess and meet needs.
Changes to the classroom that may help include:
• A seat near the front of the classroom.
• Large-print textbooks or a tablet computer.
• A tablet computer that can be synced to an interactive whiteboard at the front of the room, if your child wants to sit farther back in the classroom.
• Handouts of the content written on boards or overhead screens.
• High-contrast printed documents, such as black type on white paper, rather than using colored print or paper.
• Making the font size bigger on a computer screen.
• Avoiding bright light.
• Allowing extra time for taking tests or reading material.
Many of these same changes can be made in the work setting. Consider educating supervisors and co-workers in the workplace to help them understand any needs.
Coping with emotional and social issues
Help your child develop skills to deal with other people’s reactions to albinism. For example:
• Encourage your child to talk to you about experiences and feelings.
• Practice responses to teasing or embarrassing questions.
• Find a peer support group or online community through agencies such as the National Organization for Albinism and Hypopigmentation (NOAH).
• Talk to a mental health professional who can help you and your child develop healthy communication and coping skills, if needed.
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