Редкие болезни: только 10% россиян получают помощь
29 февраля - Международный день редких, или орфанных, заболеваний. На самом деле, они не такие уж редкие, как следует из названия - страдают 7% населения Земли. Но “редкий“ статус позволяет медицинским властям наплевательски относиться к пациентам: адекватное лечение получить непросто. Особенно - в России, где из 2 млн страдающих орфанными заболеваниями нормальную медицинскую помощь оказывают только 10%.
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